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Patient & Family Experience

Overview

The aim of the Patient & Family experience working group is to ensure that the voice of children with cancer is central to the work that the network undertakes across the region. The group will be responsible for ensuring that there is effective representation on all of our working groups and for the development of a patient and family experience group to support co development and design of the work programme for the network and also for regular collection and analysis of patient experiences across the region. The working group will feed into the Network Oversight Group, providing regular highlight reports and will work to an agreed workplan with clear aims and objectives in relation to patient experience.

We are looking for volunteers to ensure there are patient / family representation on this group. If you are interested please get in touch. Similarly, if you are a professional working in Oncology and want to be involved in this group, please get in touch!

For more information on the Working Group or Task & Finish Groups; please contact the Innovation Project Officer for the ODN, Katharine.Field3@mft.nhs.uk

To become a member or get involved; please email info.nwccodn@mft.nhs.uk

Working Group Structure

Dates

To ensure dates and times work for the majority of members, meetings are often organised via polls. This gives members a chance to vote for their preferred slots.

Working Group: quarterly meetings (Feb, May, Aug, Nov)

T&F Groups: ad hoc pre-arranged meetings

Meetings are virtual (via MS Teams) and tend to be 1 to 2 hours long.

Workplan 25/26 (current)

Workplan 24/25 (previously completed)